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Enter your state or zip code to find a THERAKOSTM Photopheresis treatment center near you

Talk to your doctor to determine if treatment is right for you

 
 
 
Patients & Caregivers / Taking the Next Step /
Talking to Your Doctor

Talking to Your Doctor

What could I ask my doctor?

The following pages can serve as a guide to help you get the most from your doctor visit.It might help to print out pages,add any other questions you have,and take these pages with you to your appointment.

About CTCL

What to expect during your visit

Diagnosing ctcl can be difficult, since the skin symptoms seen in ctcl can mimic symptoms seen in other skin diseases. Be prepared to answer questions about your symptoms and how they are affecting your life

Be as specific as possible: Is your itching severe? Are you becoming depressed from your skin problems? Are you having trouble sleeping? Tell your doctor everything. Leave nothing out. Consider writing down all your thoughts ahead of time.

What to ask your doctor

What is CTCL?
Do I have CTCL?
If I have CTCL, what type do I have?

Please type any additional questions below

About your symptoms

What to expect during your visit

Symptoms of CTCL can vary greatly from person to person .They include patches, plaques, skin tumors, skin redness, enlarged lymh node, itching, scaling, and skin cracking. Tell your doctor if you experience any of these symptoms.Expect your doctor to carefully examine your skin and lymph nodes to look for any sign of these symptoms.

What to ask your doctor

Do I have symptoms of CTCL?
Could my symptoms possibly be caused by anything else?
Are there other symptoms I should be looking for?
Can my symptoms change over time?
How long do the symptoms last?
What stage of CTCL do I have?

Please type any additional questions below

About the treatments

What to expect during your visit

There are many possible treatments for CTCL.Your doctor is the only one who can determine which treatment -- or combination of treatments -- is right for you. Expect any new doctor you see to ask if you've received treatment for CTCL in the past, which treatments you've tried, and whether those treatments helped relieve your symptoms

What to ask your doctor

What treatments are available to me?
What are the benefits and side efects of those treatments?
What anti-itching treatments are available?
Will insurance cover my therapy?
Are any patient reimbursement options available?
Are counseling or support groups available?

Please type any additional questions below

About living with CTCL

What to expect during your visit

Living with CTCL can be a challenge, and your doctor will understand that CTCL symptoms can be painful and, in many cases, visible on the skin, which may make some patients uncomfortable about showing their skin in public. Depression is not uncommon under these conditions, so expect your doctor to ask how you're coping with your symptoms. If you think you may harm yourself, call 911.

What to ask your doctor

What sleep aids are available to me?
What antidepressant medications are available to me?
What kind of supportive treatments can I try?

Please type any additional questions below

About THERAKOS™ Photopheresis

What to expect during your visit

TERAKOS™ has helped many patients with CTCL in the past and has been used in over 500,000 treatments. Your doctor may consider it a possible treatment for you. However, not all patients will respond to treatment.

What to ask your doctor

Is THERAKOS™ Photopheresis an option for me?
How will if the therapy is working?
How long will it take to worki in my body?
Will symptoms go away entirely?
Will I be cured?
What side effects might I experience?
How long will I receive therapy?
What should I do before, during, and after treatment?
Is there anything I need to do or avoid after treatment?
Are there any foods or medications that I should avoid after treatment?

Please type any additional questions below

Type your zip code to also print a list of treatment centers near you.
 

Important Safety Information

Indications

Methoxsalen Sterile Solution is indicated for extracorporeal administration with the THERAKOS™ UVAR XTS® or THERAKOS™ CELLEX® Photopheresis System in the palliative treatment of the skin manifestations of cutaneous T-cell lymphoma (CTCL) that is unresponsive to other forms of treatment.

Methoxsalen is not appropriate for patients who have had a reaction to psoralen compounds, patients who have had a light sensitive disease, or patients with an absence of one or both lenses of the eye.

THERAKOS™ Photopheresis is not appropriate for patients who cannot tolerate blood volume changes or patients with blood clotting disorders. See Important Safety Information for additional details.

 
 

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